Wednesday, May 9, 2012

Been a little stressed these days. To make a long story short, Scarlet has been complaining about her elbows and knees hurting a lot. Let me explain. SHE IS A TOUGH COOKIE. Many have commented in the past when they see her take a fall. She does NOT cry unless she has a BAD fall. And I mean like a big fall you hear from the other room. And when THAT happens, she cries for MAYBE 10 seconds? 30 at the VERY most and I'm not sure THAT'S happened more than once in her whole life. She just doesn't cry when she gets hurt. If she complained about her knees after a fall, I wouldn't think twice about it. But we will be DRIVING, WATCHING TV or sitting in her highchair- NO REASON FOR PAIN and out of nowhere she will start FREAKING OUT pointing to her elbows or knees saying "Owie! Owie! Hurt! Hurt! Elbow! Elbow!" And it will last minutes. She's been doing this for about two weeks now and it seems to be progressing.

After a few days of this I thought, "Is this a sign of Lyme? Is this what she's telling us?" My sister and her husband have lyme and this is a symptom. Joint pain. So I mention my slight concern to Greg and he said he thought of the same thing, but let's just wait it out a bit and see as we go. Well, it doesn't lighten up. It keeps going. So at this point I'm getting more concerned and want to get her tested and see a doctor. Well that was just a big 'ol ball of stress right there. I found 2 doctors on the entire east coast that will even SEE her because she is so young. One is down town DC, and honestly doesn't deal with a lot of kids. The other is the MASTER of treating kids with lyme, but can't get me in until SEPTEMBER. There is SO MUCH more emotional drama to this part of the story, but we'll just skip it.

Meanwhile, I have such a stomach ache even THINKING about getting her blood drawn because it seems the only times I've heard of kids having their blood drawn, no one can ever find a vein and it takes 2 hours of poking 'till it finally happens. This stressed me OUT. I mean, feeling like I was going to throw up for a couple days. Ok, so I finally decide to just get her blood drawn and send it to IGenex, because they do the most thorough testing for lyme. This brought on MORE drama.

I meet our new pediatrician for the first time, which was an immediate rocky start (this woman doesn't even smile, why is she working with kids?) ANYWAY. I know she thinks I'm an idiot and starts spouting off Scarlet's insanely low risks for lyme, but at the same time spouts off a few INCORRECT comments about the whole disease, but it's not like I can just say, "Lady, I know you have a medical degree 'n all, but I apparently know more about this than you do." But I finally cut her off and say, "Is this test going to hurt her at all? Is there any down side? If not, I want her to take this test." At that point I think she knew it was a waste of time talking me out of it and gave me the signature I needed and sent me to a lab.

THAT lab sucked and had the WORST service ever to make me wait around and finally say, "Oh, we can't do that here. Take it to the hospital." So I go to the hospital for them to tell me the SAME THING, "We can't send blood off to other labs. There's liability issues." BUT, this guy was REALLY REALLY nice and told me where to go. Fairfax. So a lovely 45 minute drive, a bit of getting lost and I FINALLY make it to INOVA, who takes courtesy draws. I arrive and the receptionist tries to tell me they won't do it either and this is basically my one last chance. I can't tell you how sick of receptionists I am. They never know ANYTHING. They always just want to send me away. On the phone, they always have accents I can barely understand them and they can never understand what I'm trying to ask anyway. That's why I just keep showing up, HOPING they'll help me. But I persist and a lab tech or SOMEBODY shows up at just the right time and solves everything. Her name was Kia and she was sent from above. She was REALLY nice, REALLY helpful and COMPLETELY went out of her way to help me.

Scarlet getting her blood drawn was no biggie. I mean, she cried and hated it, but the whole thing lasted a minute. It was quick. I was so relieved. All that stress for nothing.

There is so much to the story that I'm leaving out. I cannot even describe how many overwhelming feelings, tears and struggle there has been to get this DONE. Even mailing off her blood samples was an ordeal.

Through it all Scarlet was a champ and was very happy and made my day so much better than I thought it was going to be. This whole thing was spread out over days/weeks, but the day it ACTUALLY happened, Scarlet was amazing.

So now we wait. Either way, I think something is wrong with Scarlet. Her joint pain seems to be more frequent and possibly waking her in the night? Not positive about that one yet. I think it definitely happened once. So SOMETHING is wrong. And it panics me. Others have mentioned that it could be growing pains, but I looked it up and on different sights it said that the pain is always BETWEEN joints, never the actual joints and that THAT would be something different and more serious. Hooray. I just keep hoping that she doesn't have lyme and this joint thing is random and it all just goes away! But we'll see.

Somedays I feel so full of faith and that everything will be fine, which ever way it goes and I really feel positive! Other days I feel consumed with worry and all I can do is look at articles online or watch Grey's Anatomy while stuffing my face with chocolate. Good stuff.

MEANWHILE. On my way home from getting her blood sent off, I get a call from my OBGYN saying my glucose test was kinda high and I need to take ANOTHER test, but a 3 hour test. YES! Gestational Diabetes would just be the cherry on top, right? Well, if that comes my way, at least I will be skinny fast after my delivery.

That's ANOTHER THING. I wish the baby would come. I feel bad saying that. If I delivered today my baby would have serious problems. Not what I want. But seriously, because I was pregnant and miscarried- with the exception of two weeks I HAVE BEEN PREGNANT LONG ENOUGH TO HAVE A BABY ALREADY. Well, to have the baby this month. Annoying. I'm done being pregnant. I never sleep. I pee about every two hours all night long, every night. If I get a 6 hour stretch, it's amazing. But that happens like once a week. I don't remember it being this bad with the last one. I don't know. Maybe it was.

I've pretty much confided in no one about this lyme worry. So please don't be hurt I didn't confide in you. Two reasons. I keep getting these two different reaction, both of which I despise. The overreactive, "You have to do this!" Reaction. Where I feel like I'm doing something wrong or not good enough and I don't want to get more stressed out than I already am. And then there's the LOOK. The look that says, "Man, you're an idiot. Don't you realize how there's basically no way your baby has lyme? Are you really this stupid?" Not EVERYONE reacts this way, but it happens a lot and I'm sick of dealing with it. And I seem to keep it all together emotionally, UNTIL I talk about it, then I feel depressed. So I'd rather just not talk about it. Like now. Now that I've talked it out, I feel all down. And I think, "Why did I blog about this? Now everyone's going to know. And maybe she doesn't have lyme at all." But oh well. This blog documents my life and this has been a part of it. And I figure people's awareness and hopes and prayers don't hurt either. So there ya go.

12 comments:

Danielle said...

Oh man...I am so sorry- I just HATE that you are going through this. I seriously hope I am not overbearing or anything. I am just trying to be as helpful as possible. I think it's good you told people so they can pray for Scarlet and you and Greg. I am SO glad the blood thing got sorted out- and I'm just so grateful you did go to that trouble so that it got sent to Igenex. I'm sorry that people are complete morons and look at you like you don't know what you're talking about. The truth is, you DO know way more about Lyme than MOST doctors. For real. It's a sad truth. Don't let people make you think otherwise, or doubt yourself. It WILL all be okay. I can promise you that! If she does have Lyme, do you know how lucky you are that you know about it and are seeking out the RIGHT diagnosis NOW? So many poor children probably have it and their parents don't know about Lyme like you do so they go years without being treated correctly. You know about Lyme, so if she has it, you can get it taken care of. She wont have Lyme her whole life, and she wont be in pain her whole life either! It will all work out. I know it. I love you SOOOO much. You are so strong!

Sharon/Mom/ Grandma said...

I agree with everything Danielle said. I also am thinking about how many times I felt I should call you. But maybe that wouldn't have helped. I am a firm believer in sharing things like that even though they are hard,because I believe the more of us pray the better it will be, the more comfort you will feel. And like Danielle said, we are so blessed to live today when there is more knowledge about lyme. She won't have to live with this forever and all she has to do to get well is take pills. How easy is that. So all will be well Megan. You are a good mom, don't let anyone ever tell you otherwise. I am grateful you were brave and told your doc what you needed even though she doesn't' think you know what you are talking about. I always say what my first general practitioner said,"you are the mom, YOU will know what is best!" love you sooooo much. I'm glad the baby isn't here today! It was probably almost this bad last time, the pregnancy. Heavenly Father makes us forget everything so we will keep craknen out those babies! love you!

AMY AND MIKEY said...

Oh Megan, i am so sorry. Like Danielle said, thankgoodness you are so aware of all of this, and that you do know so much. Just think if Danielle and Clay didn't have lyme we wouldn't have thought anything of the tick. And now, if she does, you know what to do and how to take care of it. Scarlet is a happy soul, so regardless she has the perfect attitude and personality for an illness, a positive one. I'm so sorry that all of this is happening at the same time! Why do these things have to pile up so much? Why can't they be more spread out?! It seems when it rains it pours. I love you so much and I am so sorry you are so far away and that I can't hang with you and make you cookies and watch pointless shows together. I love you. And we will pray for you.

AMY AND MIKEY said...

and pregnancy just sucks!!!!!! I think peopel who love being pregnant are insane.

Grandma, Nonnie said...

Oh Megan, I am so sorry you had to go through all of this in a place where you have no friends and family to help. Being pregnant on top of it also makes everything harder. I agree with all that everyone else has said, and I think some people just don't have common sense, and are just plain stupid. As Granny Biggs would say" Don't let the turkeys get you down". You do not want that little boy to come until he is due, as it would just compound your problems, and I will be praying for him to stay where he is. That being said I agree with Amy I think being pregnant is tough and one of the hardest things I did as a young woman. It has been worth it though, as it has given me so many loved ones. So hang in there and keep on doing the things you have to, and I pray you don't have Ges. diabetes, as it is the pits. Try not to drink a lot of water after 6 pm and maybe you won't pee as much, just take little sips to quench your thirst. Watermelon is something that makes you pee, and soda pop, but as I remember you don't like soda. I can relate as I usually pee a few times during the night also and it is a pain. You are one brave and wonderful mom and I for one am so glad you are such a special and determined one. God Bless You I love you so much and my prayers are with you. Hugs and kisses

HeidiT said...

That stinks that this has been so stressful for you. I say it's better to be overly cautious when it comes to health and our children, mom's know best so don't let anyone make you feel stupid about the whole ordeal! Especially your doctor...you've got to get rid of her. Our first visit to a pediatrician when Cami was born was someone who came highly recommended to take into account her limb differences too and from the moment he walked in he was rude and horrible with children. We switched to a different doc within the same practice and have loved her - find someone you like, it makes a HUGE difference.
Oh,on the nursery thing with Cami - her teacher reads my blog so I kind of had to be nice about it - but we do just drop and run and let her cry it out...unfortunately the teachers have taken her out in the hall or come and gotten us every time. It's totally frustrating because then we have to go take her back in there plus it's a bit unorganized in there which doesn't help.

Rebecca said...

Sigh....I'm so sorry everything royally sucks for you right now. I'm so glad you persisted and got her blood drawn. Unbelievable how stupid everyone was. As for growing pains, my kids have had a lot of those and it never was in the joints, and ibuprofen always made them go away within a half hour. And they are almost always during the night. Doesn't sound like growing pains to me. I fasted for you guys last Sunday and you will both be in all our prayers. We love you.

Watts Family said...

Megan I am sorry you are having to go through all this. I will keep you guys in our prayers. It is better to be safe than sorry. So even if it isn't Lyme disease maybe it is something else and they can figure it out. I am sorry Megan. Love you!

Kristi M. said...

Things are always so hard to figure out with children because they can't fully tell you what is going on. Hopefully you can start ruling things out now and figure out what is really going on. Never easy. You should find another pediatrician. So not worth dealing with someone that is not nice. Especially when it comes to kids. As parents, we need all the help we can get when it comes to doctor visits. We've been lucky with an awesome family doctor. It just takes time finding the right one. I hope the tests come back quickly for you so you so you can get an answer soon.

Grandma said...

Oh Megan , I have to say this has been horrible for your family. The not knowing and then having to struggle and fight to be heard is just in this day and age is deplorable. You know something is wrong. So stay with it even when someone rolls their eyes at you. Several times in our life with our children growing up we knew something was wrong and it was like the doctor rolled her his or her eyes at me. One time it was fighting over knowing my little 1st grader had pneumonia. The doctor was angry about taking the x-ray..Yes she had pneumonia...NO apology at all. So whether you are right or wrong you have one test that will help rule that out and a base line for other tests. YES find a different pediatrics. Would Zac and Fiona know one? You two a terrific parents.

Grandma said...

I forget my comments come over as
Grandma..The previous comment was from Aunt Rosie.

Amy said...

I'm sorry. Having to stress over your kids safety and health is the worst. Hopefully everything fine. Either way it always feels better to know that you did everything you could do. And it sounds like you did. I'm like you, if there is even the smallest chance that something is wrong with one of my kids I freak out and have emotional ups and downs until it's taken care of. We will pray for you and Scarlet.

PS. I got hooked on greys anatomy for awhile and loved it. At some point I stopped because it just got less interesting but oh man those first couple of seasons are sooo good!